EB—or Epidermolysis Bullosa—is devastating, and currently without a cure.
Individuals with EB lack critical proteins that bind the layers of the skin together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement and wounds that never heal. EB affects the body inside and out. Blisters occur all over the body, as well as in the eyes, mouth, esophagus, and other internal organs. EB causes severe pain, disfigurement, and, in too many cases, an early death from an aggressive form of skin cancer. It is estimated that EB affects at least one in every 20,000 births. EB is not specific to any ethnicity or gender. Given that EB affects only 25,000 - 30,000 people in the US, advancing this research relies on the generosity of individuals, foundations, and corporations. ("EB Research Partnership" 2014 https://www.ebresearch.org/)
EB Research Partnership (co-founded by Jill & Eddie Vedder, Jamie & Alex Silver and Heather & Ryan Fullmer) have raised over $15 million dollars to fund research that will treat and cure EB.
#CauseTheWave Pearl Jam Fan Movement is a Wishlist Foundation project honoring individuals and families affected by EB (Epidermolysis Bullosa). Our goal is dedicated to raising awareness through various social media platforms, raising funds through numerous fundraisers, and to ultimately support Jill & Eddie's collective philanthropic efforts to assist in helping to find a cure to #HealEB.
Please visit #CauseTheWave Pearl Jam Fan Movement Facebook page:
Check out our Facebook group:
Plus follow us on Twitter: https://twitter.com/WishlistCTW
And Instagram: https://www.instagram.com/causethewavetohealeb/
Join us to #CauseTheWave to #HealEB!
EB Research Project (EBRP)
Cause The Wave: Eddie Vedder and the EB Research Partnership:
Pearl Jam fans wish Eddie Vedder Happy Birthday #CauseTheWave #HealEB #HappyBirthdayEV:
Eddie spoke about EBRP with Dr. Jakub Tolar at St. Paul show - check out the videos:
Eddie mentions #HealEB and the fan efforts at the Milwaukee show:
Fans helping to #CauseTheWave in 2014:
2015 #CauseTheWave #HealEB Global Valentine's Fundraiser:
2016 Cause The Wave 52 for 52: Birthday Celebration for Eddie Vedder:
2017 “No matter how cold the winter... there's a springtime ahead...” scarf campaign and Birthday Celebration for Eddie Vedder #HBDEV53:
2018 "The smallest oceans still get big, big waves..." Birthday Celebration for Eddie Vedder: #HappyBirthdayEV #EV4EBRP #CauseTheWave to #HealEB
#ComeSayHi with Eli and Eddie Vedder: https://youtu.be/zJu6X6tOsLs